Borrelioosiin sairastuneiden henkilökohtaisia kokemuksia taudista ja sen hoidosta.

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Viestit: 1820
Liittynyt: Ma Tammi 26, 2009 23:13


Viesti Kirjoittaja Bb » La Tammi 31, 2009 18:06

Bill Chinnock, 59, oli Bruce Springsteenin E Street Bandin perustajajäsen. Hän sairasti borrelioosia. Hänet löydettiin kuolleena kotoaan viime keskiviikkona. Chinnockin managerin mukaan tämä teki itsemurhan. Chinnock esiintyi elämänsä aikana kaikkialla Amerikassa ja sävelsi musiikkia elokuviin ja radioon. Long Island News, Sports, Entertainment


Bill Chinnock, 59, a founder of E Street Band

The Associated Press

March 9, 2007

YARMOUTH, Maine - Musician Bill Chinnock, a founding member of what became Bruce Springsteen's E Street Band, died Wednesday at his home, police said. He was 59.

Chinnock, a blues and roots rock stylist, had been suffering from Lyme disease and police said they were called to his East Main Street home by his live-in caregiver. Lt. Dean Perry would not comment on the cause of death but said "it is not of a suspicious nature." Chinnock's manager, Paul Pappas, told WCSH-TV, Portland, that the guitarist, keyboardist and singer-songwriter committed suicide.

A native of Newark, N.J., Chinnock was a key figure in the Asbury Park music scene that propelled Springsteen to stardom.

Chinnock moved to Maine in the 1970s. He made 13 albums and in 1987 won an Emmy for his song, "Somewhere in the Night." A duet he recorded later with Roberta Flack became a theme song for the soap opera "Guiding Light." His albums include "Blues," "Badlands," "Alive at the Loft," "Dime Store Heroes," "Livin' in the Promised Land" and "Out on the Borderline." In addition to performing around the country, Chinnock wrote music for films and television.
He had been living in Yarmouth for at least eight or nine years, Perry said.

Copyright 2007 Newsday Inc.
Viimeksi muokannut Bb, Su Helmi 01, 2009 14:01. Yhteensä muokattu 1 kertaa.

Viestit: 1820
Liittynyt: Ma Tammi 26, 2009 23:13

Viesti Kirjoittaja Bb » Su Helmi 01, 2009 13:14

Tieto Bill Chinnockin (59) kuolemasta oli Jodi Irelandille musertava. He olivat aikoinaan naapureita ja edelleenkin hyviä ystäviä. Molemmat sairastuivat borrelioosiin 1990-luvun lopulla. Ireland sai erilaisia oireita kuten rytmihäiriöitä, päänsärkyä, raajojen puutumista ja voimakasta fatiikkia. Chinnock auttoi häntä saamaan oikean diagnoosin kuten hän auttoi vuosien aikana lukuisia muitakin borrelioosiin sairastuneita. Hän oli aina positiivinen. Siksi ystävien on ollut vaikea uskoa Chinnockin luovuttaneen ja päättäneen päivänsä. Irelandin mukaan tauti on välillä melko oireeton mutta oireet palaavat usein takaisin hoitojen loputtua. "Oireiden uusiutuminen tuntuu joka kerta lähes kuolemalta."

Kummallakin oli vaikeuksia saada diagnoosi. Chinnockin lääkärien mukaan tämä on mielenvikainen. Irelandilla oli lääkärien mukaan fibromyalgia. Lopulta Chinnock löysi lääkärin Connecticutista, joka diagnosoi borrelioosin kummallakin. He aloittivat antibioottihoidot. Kummallekin jäi kuitenkin oireita hoitojen jälkeen. Hyvät ja pahat päivät seurasivat toisiaan. Toisinaan Chinnock kykeni tekemään 17-tuntisia työpäiviä uuden musiikkialbuminsa parissa - toisinaan hän ei kyennyt tekemään töitä laisinkaan. Chinnock voi kohtalaisen hyvin vuosina 2004 - 2005. Hän oli löytänyt uuden yrttivalmisteen joka oli auttanut häntä. Hän pystyi jälleen tekemään pitkiä työpäiviä. Viime vuonna hän kuitenkin soitti Jodille ja kertoi ettei voinut enää kovin hyvin. Tämän jälkeen Jodi ei kuullut hänestä. Chinnockin kertomus on listattu -sivulle. Sivulla on 230 borrelioosiin kuolleen kertomukset.

Niin monet ihmiset ovat sairaita ja silti niin monet lääkäreistä eivät tunne borrelioosia. Arvioiden mukaan vain noin 10 % tautitapauksista raportoidaan. Sairastuneet käyvät lääkäriltä toisen luona saaden mitä erilaisimpia diagnooseja mutta eivät useinkaan borrelioosidiagnoosia. Useat sairastuneista menettävät työnsä, ystävänsä ja sukulaisensa. Useimmiten sairastuneille sanotaan että "he näyttävät hyviltä". Jodi kertoo inhoavansa tuota lausetta. Sanojat eivät ymmärrä, että sairastuneella on useimmiten ollut suuria vaikeuksia lähteä liikkeelle ja saada esim. pestyä itsensä jne.... ... ase_facts/

Lost to Lyme

By Lindsay Tice , Staff Writer
Sunday, March 18, 2007

Bill Chinnock's suicide means Maine's Lyme disease community has lost a champion ... and so much more. But they hope his death will bring help and maybe a cure.

When Jodi Ireland heard last week that Bill Chinnock had died, she was stunned.

When she learned he'd killed himself, she was devastated.

As neighbors in Fairfield, Chinnock had helped her find a diagnosis - Lyme disease - for the crushing fatigue, headaches and numbness that plagued her.

Chinnock, a well-known Maine rock musician, an Emmy-award-winning composer and a founding member of what became Bruce Springsteen's E Street Band, was waging his own battle with Lyme. The little-understood tick-borne illness can leave patients debilitated, in pain, confused and forgetful. Still, he encouraged Ireland. He was hopeful.

"I don't know how he did it, but he always stayed so positive," Ireland said.

Like many Lyme patients, Chinnock - a husband and father - had his ups and downs. But he always seemed eager to help others, eager to tell them they'd be all right. In Maine, he was the Lyme disease community's champion. He was its rock.

And then, late last week, police were called to Chinnock's home. His manager said he committed suicide. In the press, his sister blamed it on the disease.

The news sent the Lyme community reeling.

"I just lost it. I kept saying 'I can't believe he did that,'" said Ireland, a dance teacher now struggling with a Lyme relapse. "I can't believe he gave up."

'Survive and rise above'

Over 23,000 new cases of Lyme disease were reported in the U.S. in 2005, nearly 250 of those in Maine, according to the National Centers for Disease Control. But because testing isn't always accurate and because Lyme can mirror other diseases, experts say there were likely many more new cases than that.

Lyme can cause myriad symptoms, including exhaustion, joint pain and a generally "foggy" feeling. If caught early, experts say, the disease can be cured with antibiotics. But some people aren't diagnosed for years. When that happens, despite long-term antibiotics, their symptoms are chronic and severe, turning them from healthy to bed-ridden without warning.

"It's almost like a death every time you get sick again," Ireland said.

Many Lyme patients go from doctor to doctor, getting diagnosed with every disease but Lyme. Some lose their jobs because they can't keep up with the workload. Others lose relationships because friends and family don't understand the illness.

In Maine, the Lyme disease community is particularly close.

A handful of support groups meet every month, trading help and advice. An online Yahoo group has 175 members who post hundreds of messages each month. For some, it's the only place they can find real understanding.

"Other people say 'Well, you look good.' I hate that expression. Never mind that it took me all day to take a shower. Maybe I can put on mascara by the time my husband gets home," said Gail Richard, a former special education teacher who lives in Livermore Falls.

Chinnock and Ireland both became sick in the late 1990s. They lived down the road from each other and he worked out at a gym she owned with her husband, she said.

"We realized we were both having a lot of the same symptoms," Ireland said.

Exhaustion. Headaches. Heart palpitations. Numbness. They checked for chemicals in the water. He went to doctors out of state. She went to doctors locally.

"Basically his doctors told him he was crazy and mine told me I had fibromyalgia and to go home and cope," Ireland said.

Chinnock eventually saw a doctor in Connecticut, where Lyme was named (after the town of Lyme, Conn.) and diagnosed in the 1970s. He called Ireland, excited, urging her to be tested for Lyme disease, too.

They both had it.

"I will always feel that I owe him so much. He helped save my life," Ireland said.

Chinnock and Ireland went through treatment, including antibiotics, but some symptoms persisted. After Chinnock moved to Yarmouth several years ago, the pair kept in touch.

They each had their ups and downs. Sometimes Chinnock felt well enough to put in a 17-hour day producing a new album. Sometimes he couldn't work at all. But no matter what was going on with his own health, Chinnock sought out others to help.

"So many people are so sick and so few doctors know enough," Ireland said.

He advocated for greater Lyme disease public education. He met with Lyme sufferers, recommending doctors and suggested treatments. Sometimes he simply commiserated, a blessing to patients who felt unheard for so long.

He was constantly upbeat, unfailingly positive.

Already a music legend as a songwriter and guitarist, Chinnock soon became a legend in the Lyme community as well.

"A lot of people knew Bill. He helped a lot of people get diagnosed," said Constance Dickey of Hampden, founder of the MaineLymeDisease support group on Yahoo and chairwoman of the International Lyme and Associated Diseases Society.

Stacey Cimino, a southern Maine resident, met Chinnock after learning she had Lyme. She'd been dealing with the symptoms - headaches, seizures, tremors, breathing and heart problems - for a decade. Doctors told her she had everything from Lou Gehrig's disease to stress. By the time Cimino was diagnosed with Lyme, she was sick and tired of being sick and tired.

Chinnock sent her an e-mail.

"He said 'God has a plan for people. You'll get through this,'" she said.

He offered advice in his letters, telling her about his own experience with a new treatment. He encouraged her, like he encouraged so many people, to keep fighting.

"You will survive and rise above," he wrote.

Grief and hope

In 2004 and 2005, Chinnock seemed to be doing well. He'd found an herbal supplement that helped and he was working long hours on a new album, the first in years.

But when Chinnock called to check in with Ireland last year, he told her he wasn't feeling well again. That was the last time she heard from him.

On March 2, Chinnock's live-in caretaker called police to his Yarmouth home. His manager said he committed suicide.

Chinnock was 59.

"This has been a huge emotional blow," said Dickey, the support group founder. "It has rocked the community."

Some now wonder how they can possibly be strong enough to handle the waves of pain and fatigue if Chinnock, their champion, couldn't.

"It broke my heart because I know what he goes through, I know what he went through," said Richard, the former special education teacher. "There are some days you don't want anyone to talk to you or touch you, the pain is so bad. I walk from window to window and look outside. I'm 52 years old and I feel 80."

For a week, online message boards have buzzed with news of Chinnock's death.

"I'm sure many of us here have had thoughts similar on our very worst days. How bad must he have been to take that last final step? My heart breaks for him," wrote one person on

"I pray that he has found peace at last," wrote another. now lists Chinnock among 230 people who have died from Lyme or other tick-borne diseases.

But even as they grieve, Lyme patients say they also have hope: that Chinnock's death will not be in vain.

"I hope someone in Augusta is paying attention," said Dickey.

They want publicity. They want Lyme disease education for doctors and the public. They want passage of a federal bill earmarking $100 million for Lyme disease research and prevention. They want passage of a state bill that forces insurance companies to cover Lyme patients, requires employers to educate workers about Lyme if they work in a high risk area and creates a study of Lyme disease issues.

It's all been missing, they say. And maybe now, with Chinnock's death, it will come.

"I bet that's what he would have wanted, too," Ireland said.

Lyme disease facts

? Nearly 250 new cases were reported in Maine in 2005, the last year data is available.

? Disease comes from deer ticks.

? Symptoms often begin within days or weeks and sometimes come with a red rash that can look like a bull's-eye.

? More severe symptoms include joint pain, fatigue, muscle aches, headaches, nervous system problems, facial paralysis and a general "foggy" feeling.

? Lyme can mirror other illnesses and is sometimes misdiagnosed as arthritis, Lou Gehrig's disease (ALS), fibromyalgia, chronic fatigue syndrome and multiple sclerosis.

? Treatment is a course of antibiotics, although doctors debate how long treatment should last.

Deer tick facts

? Both baby deer ticks and adult deer ticks can transmit Lyme disease.

? Baby deer ticks are about the size of a pinhead.

? Adult deer ticks are often shiny, reddish brown with black heads.

? Deer ticks favor trees and leaves, although they can be found on the coast or in grass.

? They must feed on someone for 24 to 48 hours in order to transmit Lyme disease.

? They can also transmit ehrlichiosis, a rare disease with flu-like symptoms, and babesiosis, a malaria-like disease that affects red blood cells.

? Use insect repellents with DEET and protective clothing to prevent tick bites. For pets, use only repellents OK'd by a vet.

? To remove a tick, grasp it with fine tweezers as close to the skin as possible. Pull gently but firmly. It could take several minutes. Do not handle ticks with your bare hands.

What you can do

? Several U.S. centers test ticks for Lyme disease, including those listed below. Contact each for information on price, response time and proper procedure for mailing.

North American Laboratory

New Britain, CT

(203) 826-1140


New Jersey Laboratories

New Brunswick, NJ

(732) 249-0148


Palo Alto, California



Tick Research Laboratory

Kingston, Rhode Island


? The Vector-borne Disease Laboratory at Maine Medical Center identifies ticks and can tell whether they have fed long enough to transmit Lyme. It is free.

Ask your doctor or veterinarian to send the tick or do it yourself by sealing the tick in a small, crush-proof container with alcohol. Include the form found at and mail it to:

Vector-Borne Disease Laboratory

Maine Medical Center Research Institute

75 John Roberts Road, Suite 9B

South Portland, ME 04106

Sources: Maine CDC, the Vector-Borne Disease Laboratory,, International Lyme and Associated Diseases Society
Viimeksi muokannut Bb, Pe Huhti 16, 2010 18:52. Yhteensä muokattu 3 kertaa.

Viestit: 1820
Liittynyt: Ma Tammi 26, 2009 23:13

Viesti Kirjoittaja Bb » Su Helmi 01, 2009 14:00

Jodi Ireland on tanssinut lapsesta saakka. Nyt hän opettaa balettia ja jazzia. 7 vuotta sitten kaikki muuttui. "Olen aina ollut aktiivinen ja yhtäkkiä tuntui kuin koko ruumiini olisi alkanut hajoamaan." Hän oli koko ajan väsynyt, kurkku kipeänä, päänsärkyä ja lihasspasmeja. Lääkärin mukaan hänellä on fibromyalgia.

Jodi tapasi borrelioosia sairastavan Bill Chinnockin ja alkoi verrata oireitaan hänen oireisiinsa. Hänen kehotuksestaan Jodi testautti itsensä ja testit olivat positiiviset. Ilman Chinnockia hänen terveytensä olisi heikentynyt päivästä toiseen. Jodi ei ollut koskaan huomannut itsessään punkinpuremaa eikä ihomuutosta. Tällä hetkellä hänellä on aika ajoin "huonoja päiviä". "Välillä tuntuu, etten jaksa opettaa sillä oloni on niin kivulias."

Living With Lyme Disease

Web Editor: Vivien Leigh, reporter

FAIRFIELD (NEWS CENTER) -- Singer-songwriter Bill Chinnock took his own life in March, after a long battle with lyme disease. Many people say Chinnock's death helped put a face on a disease that can be debilitating if not diagnosed and treated right away.

Jodi Ireland has danced since she was very young. Teaching jazz and ballet to young girls has been a life-long passion. But a little more than seven years ago, everything changed.

"I had always been so active and then just all of sudden, I literally felt like my body was falling apart," Ireland said.

Ireland says she was tired all the time, and had chronic sore throats, headaches and muscle spasms.

Ireland's doctor told her she had fibromyalgia. She never imagined that she might have Lyme Disease, an illness spread by infected deer ticks, until she talked to her neighbor, rock musician Bill Chinnock.

"We just started comparing notes and we were experiencing the same thing," said Ireland.

Ireland says after Chinnock was diagnosed with Lyme Disease, he encouraged her to get tested. She did and it came back positive.

"If it weren't for him, I would have continued the downward spiral, cause I definitely wasn't getting better," said Ireland.

If caught early, within 24 hours, the disease can be treated with antibiotics. Most people get a rash, like a bull's eye, a few centimeters in diameter.

State epidemiologist Geoff Beckett says there has been a steady increase in cases in Maine. 338 were reported last year, a 30 percent increase from the year before. Beckett says that's because physicians and the public are doing a better job of recognizing the disease.

As we head into the summer season, people need take precautions.

"'The juvenile ticks that are out there right now. They may look pretty small, so you want to look at things that look like freckles, and if you do see a tick, remove it using tweezers," Beckett said.

Ireland wasn't even aware she had been bitten. She never had a rash.
Long term antibiotics help relieve some of her symptoms. But she has to pay for all her treatment out of pocket.

A bill is pending before lawmakers that would force insurance companies to pay for the treatment of Lyme disease. It would also require employers to educate their employees about the disease if they work in a high risk area and create a study on the effects of the disease throughout the state.

In the meantime, Jodi Ireland relies on her eager young pupils to get her through the "bad days."

"There are times it would be really easy just to sit out the class and and say I'm achy and I can't do this. But you know those kids are out there waiting for you, it pushes you to get out there," said Ireland.

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