Borrelioosiasiantuntijan näkemys Borrelioosista

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Borrelioosiasiantuntijan näkemys Borrelioosista

Viesti Kirjoittaja soijuv » Ma Helmi 28, 2011 13:15

http://www.winonadailynews.com/news/loc ... 03286.html

27.2.2011 "Borrelioosiasiantuntijan näkemys Borrelioosista

Nykyiset diagnostiset- ja hoidolliset menetelmät estävät suurta osaa potilaista saamasta välttämättömiä hoitoja. Borrelioosiasiantuntija, kemisti/biologi, Tom Grierin mukaan Borrelioosin diagnoostiikan ja hoidon tulee pohjautua potilaan oireisiin, ei verikokeisiin. Potilaiden hoidon kannalta olisi parempi mikäli nykyisenkaltaisia testejä ei olisi koskaan kehitettykään.Testien ongelmana on, että ne tunnistavat elimistön immuunipuolustuksen muodostamat vasta-aineet verenkierrosta, eivät itse bakteeria. Tartunnan jälkeen kestää 4 - 6 viikkoa ennenkuin vasta-aineita muodostuu riittävästi. Sairauden edetessä bakteeri siirtyy kudoksiin eivätkä testit kykene tunnistamaan niitä. Testit ovat hyödyttömiä siis tässäkin vaiheessa.

Sharon Kirkpatrickin Borrelioosi diagnosoitiin 20v sitten. Hänen puolisonsa sairastui 14 v myöhemmin. Siitä alkoi heidän taistelunsa. Amerikan infektiolääkärien yhdistyksen, IDSAn, hoitosuositukset estävät heitä saamasta hoitoa sillä useimmat hoitopaikat noudattavat niitä kirjaimellisesti kaikkein potilaiden kohdalla. Aiemmin he saivat antibiootteja. Sharon Kirkpatrick ei saa nyt hoitoja ja hän kertoo tulevansa koko ajan huonompaan kuntoon.

IDSAn näkemyksen mukaan Borrelioosin hoitoon riittää noin kuukauden antibioottihoito. Sitä pidemmät hoidot voivat olla heidän mukaansa haitallisia ja aiheuttaa esimerkiksi ripulia ym lääkkeistä johtuvia haittoja. Toisten näkemysten mukaan hoitosuositukset jättävät huomioimatta taudin moninaisuuden, kroonistumisen, vaikeahoitoisuuden jne. Sharon pelkää tautinsa etenevän ilman hoitoja yhtä vakavaksi kuin hänen puolisonsa taudin."


Tick expert shares Lyme disease views

By Amy Pearson / amy.pearson@lee.net winonadailynews.com | Posted: Sunday, February 27, 2011 12:00 am

Current methods used to diagnose and treat Lyme disease prevent some patients from receiving necessary treatment, said one tick-borne disease researcher.

Tom Grier, from Duluth, Minn., a biology and chemistry graduate from the University of Minnesota, spoke Saturday morning at the Winona Public Library about methods used to test for the disease and treatment guidelines set by the Centers for Disease Control and Prevention and the Infectious Disease Society of America.

"Everything is in place to create a disease that's hard to treat," Grier said.

Lyme patients should be diagnosed and receive treatment based on symptoms, not on blood-work results, Grier said.

"We'd be better off if there had never been a test," he said.

The blood tests used are problematic because they detect antibodies produced by a body's immune system, not the bacteria that causes the disease, Grier said. Within the first four to six weeks of infection, patients won't test positive for the disease because not enough antibodies are produced, he said.

As the disease progresses, Grier said, bacteria moves out of the bloodstream and into a person's tissues. Antibodies can no longer be detected at that point, rendering the tests useless, he said.

Patients would be better served if physicians focused on Lyme symptoms and did away with blood work, Grier said.

For many Grier's more than 25 audience members, his presentation hit home.

Doctors diagnosed Sharon Kirkpatrick with the disease 20 years ago. Her husband was infected 14 years later. Both have battled the disease since they were diagnosed, she said.

IDSA guidelines now prevent Kirkpatrick and her husband from receiving treatment at Winona Health specifically for Lyme disease. Previously, they said they'd been receiving antibiotics in the past to control the disease.

"I'm just getting sicker," Kirkpatrick said.

Physicians at Winona Health voted in October to not treat patients who may have symptoms similar to Lyme disease, but don't meet the criteria, as if they have the disease. Winona Health opted to treat patients with the disease only if they meet the guidelines set by the Centers for Disease Control and Prevention and the Infectious Disease Society of America, according to an internal memo obtained by the Daily News. Many other regional health centers also follow the same guidelines.

The health experts say Lyme disease patients should be treated with antibiotics for about a month and that longer treatments put patients at risk. In April, the IDSA released results of a four-year review into its own standards for treatment that show extended treatment with antibiotics can cause dangerous health complications, like blood infection, diarrhea and other drug reactions.

But some Lyme disease patients say the affliction has long-lasting effects. They want the health groups to adopt a broader definition of the disease that recognizes antibiotics as an acceptable treatment, even years after an initial diagnosis. Opponents say the guidelines ignore the complexity of tick-borne illnesses and discount a number of people who suffer ongoing symptoms.

Winona Health issued a one-paragraph e-mail response in December to its adopted guidelines:

"Winona Health considers the diagnosis and treatment of Lyme Disease a serious and important topic," the statement read. "As we have done with a number of medical conditions, we support evidence-based research and protocols which are the established standard of care."

Kirkpatrick said she believes the disease has attacked the tissue in her husband's brain and caused severe dementia.

"He only knows he was once a teacher because I tell him he was," she said.

Kirkpatrick said she is fearful that without antibiotics, her disease will progress in a fashion similar to her husband's illness.

"There's an agenda out there to prevent antibiotics from being overused," Grier said, "and it's affecting the treatment of patients."

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