Borrelioosiin sairastuneiden henkilökohtaisia kokemuksia taudista ja sen hoidosta.

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Viesti Kirjoittaja Bb » Su Helmi 01, 2009 16:00

Allaolevien tiedotteiden mukaan presidentti George W. Bush on sairastanut borrelioosia yli vuoden ajan.

Presidentin oireet ovat hyvin samanlaiset kuin lukuisilla muillakin borrelioosiin sairastuneilla. Hänellä on ollut ihomuutos, toistuvia polvikipuja, poskiontelotulehduksia, näkökentässä liikkuvia "hahtuvia", infektion oireita, huimausta, lihaskramppeja, lihas-luustokipuja, kuulon alenemista jne. Kaikkia edellä mainittuja oireita on raportoitu esiintyvän borrelioosiin ja lisäinfektioihin sairastuneilla.

Kuuluisa muusikko Daryl Hall joka itsekin sairastaa borrelioosia toivoo, että tätä kautta tautiin ja sen hoitoon ja tutkimukseen aletaan suhtautua nykyistä huomattavasti vakavammin. Nykyiset borrelioositestit ovat erittäin epäluotettavia eivätkä kykene riittävän luotettavasti diagnosoimaan tautia. ... e&sid=1110

The George Bush-Daryl Hall connection...

Orlando Sentinel, FL
by JimAbbott

When it was announced that President Bush has Lyme disease, it gave the president something in common with blue-eyed soulster Daryl Hall, who also has the disease. Hall is hoping that the president's diagnosis might bring more attention to research and treatment of the disease...

Read what he had to say below:



Los Angeles, CA - August 9, 2007 - The news that President George W. Bush has been suffering from Lyme Disease for more than a year really caught the attention of Daryl Hall, one-half of the world's biggest-selling music duo of all time Daryl Hall & John Oates, and someone who was also diagnosed with the illness over two years ago.

Hall is hoping the President's admission will focus more attention on the causes and antidotes of the little-known malady: "While I'm sorry when anyone gets Lyme Disease, maybe it takes a person in power to draw attention to what all of us who have the disease, are going through. The withholding of information for a year points out the confusing politics of the disease.

Now, George Bush can feel our pain."

Caused by a bite from an infected blacklegged tick often found on a deer, Lyme Disease symptoms include fever, headache, fatigue and a characteristic skin rash. If left untreated, infection can spread to joints, the heart and the nervous system. Most cases of Lyme disease can be treated successfully with a few weeks of antibiotics. Steps to prevent Lyme disease include using insect repellent, removing ticks promptly, landscaping and integrated pest management. The ticks that transmit Lyme disease can occasionally transmit other tick-borne diseases as well.


Lyme Disease Education and Support Groups of Maryland


For immediate release: August 10, 2007, Maryland

The Lyme Disease Education and Support Groups of Maryland are deeply concerned by the announcement that the President of the United States of America has been exposed to repeated tick bites and subsequently to the spirochetal bacteria responsible for causing Lyme disease. As cases of Lyme continue to sky-rocket across the country, more people are experiencing not only the early flu-like symptoms and swollen knee, but the chronic or late stage consequences this infectious disease can bestow on both humans and their pets.

Maryland has one of the highest rates of infected ticks in the country, with as many as 81 percent testing positive for Lyme disease. The newly identified strain (over 300 known strains), Borelli lonestari (STARI) has been detected in ticks within a few miles of highly populated cities in Maryland, however, standard Lyme tests are not able to detect its presence and specific treatment protocols have not been established.

Even with prompt treatment, up to 60 percent of people infected with Lyme disease can relapse after a standard course of antibiotics. Lyme disease symptoms can fluctuate, remit, relapse and recur months to years after the original exposure as the spirochetes spread throughout the body and compromise the immune system. Tests proving the Lyme spirochetes have been totally eradicated from the body after standard treatment have yet to be developed.

If under treated or missed in the early stages, Lyme disease is famous for mimicking many conditions including viruses, attention deficit disorder, fibromyalgia, chronic fatigue syndrome, multiple sclerosis, Lupus, dementia, Parkinson's, ALS, autoimmune diseases, stress-related illnesses, arthritis, hearing disorders and other health problems.

The President?s health report, much like those of countless Lyme disease patients, revel he has unfortunately suffered from a variety of complaints such as an EM (Lyme) rash, intermittent knee pain, muscle spasms, sinus infections, floaters, a virus-like illness, disorientation, dizziness, musculoskeletal pain, acid reflux and hearing loss. These symptoms have all been well documented as occurring as a result of an infection with Lyme and tick borne coinfections such as babesiosis, bartonella and ehrlichiosis.

Preventing Lyme disease is difficult due to the fact the ticks can be smaller than a period at the end of this sentence and can go unnoticed. Approximately 50 percent of people with Lyme disease don?t recall a tick bite and less than 50 percent have the ?typical bulls-eye rash?. Standard Lyme tests miss up to 90 percent of people who are infected. As tick populations increase, more people will contract this sometimes disabling chronic illness.

The LDESGM wishes our President the best of health always. We sincerely hope he makes a full recovery after his tick attacks and exposure to this serious infectious disease.
Viimeksi muokannut Bb, Pe Huhti 16, 2010 18:06. Yhteensä muokattu 2 kertaa.

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Viesti Kirjoittaja Bb » Su Helmi 01, 2009 16:02

Seuraavan tiedotteen mukaan presidentti Bushin terveys on erinomainen mutta häntä on hoidettu borrelioosin vuoksi vuonna 2006. Valkoisen Talon tiedotteen mukaan hoito onnistui hyvin eivätkä presidentin oireet ole uusiutuneet.

Bush's health excellent, but was treated for Lyme disease
From correspondents in Washington, United States, 11:30 AM IST

US President George W. Bush was treated for a tick-borne disease in 2006 but he remains in excellent health and 'fit for duty,' the White House has said.

Bush, 61, exercises six times a week and has 'superior' fitness for a man of his age and a low risk of heart disease, the official report on his latest physical check up said Wednesday.

The report revealed that Bush was treated in Aug 2006 for early symptoms of Lyme disease, also known as borreliosis. Treatment was successful and symptoms did not recur, the White House said.

Lyme disease, named after a town in the northeastern state of Connecticut where it was recognised in 1977, is caused by bacteria spread by ticks and can cause joint pains or nervous-system damage in severe cases. Detected early, it is easily treated with antibiotics.

The health report said that Bush has a 'vigorous aerobic, weight-training and flexibility programme' and has suffered several exercise-related injuries that 'do not impact his current duties'. He takes a daily multivitamin and smokes the occasional cigar.

'The president remains in excellent health and is fit for duty,' the White House statement said.
Viimeksi muokannut Bb, Pe Huhti 16, 2010 18:06. Yhteensä muokattu 2 kertaa.

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Viesti Kirjoittaja Bb » Su Helmi 01, 2009 16:03

Washington Postissa oli artikkeli asiasta 9.8.2007. Borrelioosiin sairastuneista n. 15 %:lle jää erilaisia oireita kuten voímakasta uupumusta ja lihaskipuja. Presidentti Bush sai borrelioosihoitoja vuosi sitten, mutta siitä mitä hoidot olivat ei annettu tietoa julkisuuteen. ... id=topnews

Bush Apparently Had Lyme Disease
President Was Treated for Rash in 2006

By David Brown
Washington Post Staff Writer
Thursday, August 9, 2007; Page A02

President Bush was treated a year ago for what appears to have been Lyme disease, the White House said yesterday in disclosing the results of his annual physical exam.

A report of the president's recent medical examination said his case had "complete resolution" and was "without recurrence" since being treated last August. The illness, an infection carried by deer ticks that is prevalent in the Northeastern United States, had not been previously revealed.

From FindLaw

* President Bush's Medical History

Your Body
Bones What's With the Itch?
The mosquito "bites" and you scratch. Here's why.

Bones Bone Matters
Your bones are constantly changing, which could put you at risk for osteoporosis.

Lyme Disease Lyme Disease
Symptoms, treatment and prevention. Plus, the life cycle of the disease-spreading tick.


While untreated Lyme disease can cause arthritis, an abnormal heart rhythm and problems with the nervous system, those complications usually can be prevented by taking antibiotics at an early stage of the infection. The medical record did not describe the details of the president's therapy.

Up to 15 percent of people treated for Lyme disease later complain of symptoms such as fatigue and muscle pain. Whether that is a consequence of the infection is uncertain and a matter of controversy. Chronic pain and tiredness are extremely common in adults; whether people who have had Lyme disease suffer from those problems in higher numbers is unknown.

"I wouldn't expect any problem at all for the president," said Gary Wormser, chief of infectious diseases at New York Medical College and an expert on Lyme disease. "He won't be impacted by this infection in the future."

Lyme disease, named after the town in Connecticut where the first cases were identified in the 1970s, causes a rash that is often its sole manifestation. Classically it is a large reddish oval with a lighter-colored center and is often described as looking like a target.

White House spokesman Scott Stanzel said Bush found a rash on the front of his lower left leg and alerted White House physicians.

While the Lyme organism Borrelia burgdorferi can sometimes be isolated in the skin or bloodstream -- and antibodies to it can also eventually be detected in the blood -- laboratory testing is often not done. That is because a person with a typical rash and a history of outdoor activity will be treated for the disease, regardless of what the tests show.

Without such tests, however, it is impossible to rule out a Lyme disease look-alike called STARI as the cause of the president's illness last summer.

STARI stands for "Southern tick-associated rash illness." It also causes a target-like rash and is associated with a tick bite, but the causative organism has not been found.

STARI is common in Texas. The lone star tick is the species that transmits it. There are no documented cases of Lyme disease in the president's home state, where he spent much of last August on vacation.

"If he got it in Texas, it was undoubtedly STARI," Wormser said.

Stanzel said yesterday that he does not know when Bush's condition was diagnosed. The interval between tick bite and rash appearance in Lyme disease can be as long as 30 days. The president could have been infected with the Lyme organism in the Washington area, with the rash appearing after he left.

STARI seems to be a milder infection than Lyme disease. There is no specific test for it. It is diagnosed primarily if a patient has a Lyme-like rash and a tick bite, but no Lyme organisms or antibodies.

People with STARI almost always take the same antibiotics that are prescribed for Lyme disease. The rash goes away with treatment, as do the flu-like symptoms that sometimes accompany it.

Wormser said it is not known whether treatment of STARI is necessary. There appear to be no long-term consequences of either treated or untreated infection, he added.
Viimeksi muokannut Bb, Pe Huhti 16, 2010 18:07. Yhteensä muokattu 2 kertaa.

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Viesti Kirjoittaja Bb » Su Helmi 01, 2009 16:11

Presidentti Bushin borrelioosista käydään edelleen keskustelua USA:ssa. Seuraavan kannanoton mukaan Valkoinen Talo ei paljasta kuinka pitkän antibioottihoidon presidentti Bush on saanut. Sivulla kysytään suojelevatko he vakuutusyhtiöitä?

(Suom.huom. IDSA:han on juuri julkaissut borrelioosin hoitoa koskevat suosituksensa ja niiden mukaan parin viikon antibioottihoito on kaikille riittävä.)

Lymeblogin sivulla kerrotaan myös Steven F. Wellsin (45) tarina. Hän kuoli borrelioosiin/ALS-oireistoon.

LymeBlog Newsletter Opinion / Editorial: Bush and Lyme disease: what's the secret? - UK ... e&sid=1117

The White House won't reveal the length of the president's antibiotics course. Are they protecting the insurance industry?

The White House reported last week that President Bush was treated for Lyme disease last summer after he discovered the bull's eye rash associated with the disease on his leg.

According to the spokesperson, Bush's doctors determined that he had fully recovered from the disease in his annual physical earlier this summer. However, the spokesperson refused to disclose the treatment that Bush had received, citing doctor-patient privilege.

While Bush has the right to keep details of his medical treatments private, this is certainly a sharp contrast with how the White House dealt with Bush's recent surgery. The public got the play-by-play on the operation in which several polyps were removed from the presidential colon. By comparison, the course of treatment for Lyme would ...

To read this story go to: ... e&sid=1117

Obituaries: Steven F. Wells, 45, dies after battle with Lyme disease and ALS ... e&sid=1116

SOUTH BERWICK ? Steven F. Wells, 45, of South Berwick, died suddenly on Aug. 9, 2007, at Frisbie Memorial Hospital in Rochester after a valiant battle with lyme disease and ALS.

He was born May 14, 1962, a son of ...

To read this story go to: ... e&sid=1116

To check out all the latest news and blogs of people who have Lyme disease go to:
Viimeksi muokannut Bb, Su Touko 10, 2009 07:51. Yhteensä muokattu 1 kertaa.

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Viesti Kirjoittaja Bb » Su Helmi 01, 2009 16:14

Seuraavassa kannanotossa ihmetellään miksi Bushin äskettäinen leikkaus julkistettiin yksityiskohtaisesti, mutta ei hänen sairastumistaan borrelioosiin eikä hänen saamiaan hoitoja.

Artikkelin mukaan syy saattaa selittyä antibioottihoidon pituutta koskevista erimielisyyksistä. Virallisen kannan mukaan parin viikon hoito on riittävä vaikka kymmenet tuhannet sairastuneet eivät ole tulleetkaan kyseisellä hoidolla kuntoon vaan heidän oireensa ovat vähitelleen tulleet yhä vaikeammiksi. Vakuutusyhtiöt eivät yleensä kuitenkaan maksa pidempiä antibioottihoitoja. Tämän seurauksena sairastuneet ovat itse maksaneet hoitonsa ja monet ovat joutuneet tästä syystä suuriin taloudellisiin vaikeuksiin.

Kansainvälisen Borrelioosijärjestön lääkäreiden mukaan (ILADS) hoitoa tulee kuitenkin jatkaa niin kauan kunnes oireet ovat poissa, kuten esim. syfiliksen ja joidenkin muiden sairauksien kohdalla tehdään. Mikäli Bush on saanut normaalia pidemmän antibioottihoidon, asettaa se IDSA:n hoitosuositukset kyseenalaiseen valoon ja mikäli epäilyksemme on oikea ja presidentti Bush on hyötynyt pidemmästä antibioottihoidosta, estää hän vaikenemisellaan tuhansien sairastuneiden hoitojen saannin. "Kiitos Herra Presidentti." ... ts_th.html

Bush and Lyme disease: what's the secret?

The White House won't reveal the length of the president's antibiotics course. Are they protecting the insurance industry?
August 13, 2007

The White House reported last week that President Bush was treated for Lyme disease last summer after he discovered the bull's eye rash associated with the disease on his leg. According to the spokesperson, Bush's doctors determined that he had fully recovered from the disease in his annual physical earlier this summer. However, the spokesperson refused to disclose the treatment that Bush had received, citing doctor-patient privilege.

While Bush has the right to keep details of his medical treatments private, this is certainly a sharp contrast with how the White House dealt with Bush's recent surgery. The public got the play-by-play on the operation in which several polyps were removed from the presidential colon. By comparison, the course of treatment for Lyme would appear to be G-rated.

Some background on the controversies surrounding Lyme disease could explain this peculiar turn to secrecy. The standard course of treatment recommended by the medical establishment is two weeks of antibiotics. This is supposed to be sufficient to kill the bacteria and cure the patient. However, there are tens of thousands of people in the United States who developed Lyme and did not fully recover after receiving this treatment. Instead they experienced increasingly severe symptoms, which include joint and nerve pain, headaches, cognitive problems, and fatigue. In some cases the symptoms are debilitating, preventing the patient from working or carrying on a normal life.

International Lyme and Associated Diseases Society (ILADS), a group of doctors specialising in tick-borne diseases, recommends treating people with chronic Lyme with extended courses of antibiotics. ILADS recommends treatment until the symptoms go away, as is done with syphilis and some other diseases. This can take years and be fairly expensive.

Insurers often refuse to pay for the extended course of treatment advocated by ILADS, forcing chronic Lyme patients to pay for treatment themselves. This is an especially severe hardship for people with chronic Lyme, since many cannot work. Getting turned down by the insurer often means financial ruin.

Lately the battle with insurers has heated up as the Infectious Diseases Society of America and the American Academy of Neurology, the main bodies of the medical establishment that deal with Lyme patients, both issued new guidelines strongly endorsing the two-week treatment path. This will provide powerful ammunition for insurers who don't want to pay the bills of people with chronic Lyme disease.

This is why Bush's course of treatment for Lyme is a matter of public interest. If his doctors thought it was appropriate that the president get treated for a period of time that is longer than the standard two-week course, and if this fact became public knowledge, it might call the two-week standard into question. Lyme sufferers and their doctors would be able to point out that the president's doctors (presumably not quacks) thought that a longer course of treatment was beneficial.

This could help to prompt more serious research on treating chronic Lyme and make it more difficult for insurers to cut off treatment for chronic Lyme victims.

Given the controversy around the disease it is difficult to see why Bush would not disclose his treatment, unless he was in fact treated for more than the standard two weeks. After all, what would be the issue if his spokesperson told the press that Bush got two weeks of antibiotic treatment?

If our suspicions are true, this is yet another disgusting episode of this administration's hypocrisy. He personally has benefited from a course of treatment that through his silence he would deny to tens of thousands of others. Thank you, Mr President

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Viesti Kirjoittaja Bb » Su Helmi 01, 2009 16:21

Presidentti Bushin borrelioosin hoidosta konsultoitiin puhelimitse ILADS:in puheenjohtaa tri Raphael Strickeriä. ILADS:in kanta borrelioosin hoidosta poikkeaa IDSA:n ja esim. nykyisin Suomessa käytössä olevista hoidoista merkittävästi. ILADS:in lääkäreiden mukaan esim. antibioottihoidon pituus määräytyy yksilökohtaisesti, ei etukäteen sovittujen "käypä hoito -ohjeiden" mukaan. Julkisuuteen ei ole kuitenkaan kerrottu kuinka pitkän antibioottihoidon presidentti Bush on saanut.

Sunday September 2, 2007

Small insect carries debilitating disease

They might be only tiny insects, but ticks have the power to turn your life into a gigantic nightmare

By Dana M. Nichols
Record Staff Writer
September 02, 2007 6:00 AM

GLENCOE - When Dr. Raphael Stricker, a San Francisco physician known for treating patients with Lyme disease, received a call from a Washington, D.C., doctor last summer, he became nervous.

Stricker said the caller, whom he did not know personally and whom Stricker did not identify, asked him lots of questions about treating Lyme disease, a potentially debilitating bacterial infection transmitted by tick bites.

"It was such an odd phone call," Stricker said. "I was actually a little paranoid."

Stricker is president of the International Lyme and Associated Diseases Society, which believes Lyme patients sometimes need longer, more expensive treatments with antibiotics than are called for by the guidelines that most U.S. medical organizations follow. Some doctors have been disciplined by state medical boards for giving the longer treatments.

Stricker said the call made sense a year later, when news broke that President Bush in summer 2006 had been treated for Lyme disease and that his physicians deemed him cured when Bush got his annual physical last month.

Stricker said he finds it suspicious that the president's physicians released fairly detailed accounts of the growths in the president's colon but did not say exactly how he was treated for Lyme disease, sidestepping what has become a medical battlefield.

On one side of the Lyme debate is the vast majority of the medical establishment, including major providers such as Kaiser Permanente and the Infectious Diseases Society of America, which sets the guidelines most doctors follow. They say Lyme disease infections can be treated with a few weeks of antibiotics.

On the other side are the International Lyme and Associated Diseases Society and thousands of Lyme patients who say the infection persists in their bodies and they need antibiotic treatments that can last months, years or even a lifetime.

That includes park naturalists Steve and Stephanie Diers of Glencoe, who say they've suffered the debilitating effects of Lyme disease for decades.

"The bottom line is money," Steve Diers said. He and his wife say they spend about $11,000 per year on antibiotic medications that Kaiser Permanente, their insurer through Steve's job, refuses to cover.

From 20,000 to 24,000 cases of Lyme disease are reported nationwide every year, making it the most common insect-bite-transmitted disease in America, according to the federal Centers for Disease Control and Prevention.

That includes 50 to 150 reported cases per year in California. But authorities say that because of the nature of the disease and inadequate
testing, there could be 10 cases of the disease for every one that is reported.

The Infectious Diseases Society of America says there are solid scientific reasons for recommending a course of antibiotics of no more than three or four weeks to treat Lyme disease.

"The problem is there are significant adverse long-term effects from these antibiotics," said Dr. Eugene Shapiro of Yale Medical School, who helped write the Infectious Diseases Society of America guidelines for Lyme disease.

Doctors say patients recover best if they are treated soon after they are bitten by an infected tick.

Often that does not happen because some of those who contract Lyme disease don't know they've been bitten. The spiral-shaped Borrelia burgdorferi bacteria can travel around the body causing a wide array of symptoms from heart palpitations and joint pain to dizziness and mental impairment. The ailment is often misdiagnosed - sometimes for years.

That's what happened to Noelle Sweeney, 19, of Lodi.

Sweeney's mother, Patty Sweeney, said she never knew her daughter had a tick bite. But the symptoms began with migraine-intensity headaches when Noelle was in kindergarten. Then Noelle got stomach ulcers, and later her muscles started to weaken.

"All the leading universities we've brought her to," Patty Sweeney said.

Finally, last year, when Noelle was 18, a naturopath in Reno suggested testing her for Lyme disease. Now, she's been on intravenous and oral antibiotics for nine months - and she's still waiting to get better.

"I am only 19, and I have hot flashes and mood swings and headaches. I am a mess to be around," Noelle Sweeney said.

The Diers, both park naturalists who have had many tick bites over the years, tell a similar story.

Stephanie Diers, 51, came from an active, outdoorsy family. She said she developed Lyme disease symptoms in the 1960s, long before the ailment even got its name.

It wasn't until 1989 that a doctor diagnosed her with Lyme disease.

Stephanie Diers says she believes the bacteria are deeply entrenched in her body and that they survived the long initial treatment she received.

She said that when she goes off the drugs, she begins suffering symptoms again.

Now, she's disabled, unable to work because of the joint pain and concentration problems.

Steve Diers, 54, says he probably contracted the disease in 1995 when he was crawling through leaf litter while flagging routes for hiking trails, one of his duties as a park ranger. Leaf litter is where the small larval form of ticks, called nymphs, hang out, waiting for a blood meal.

Steve Diers, too, has tried to go off of the antibiotics, but he finds his condition deteriorates and he is unable to work without the drugs.

Experts with the Infectious Diseases Society of America say careful studies of long-term antibiotic use for Lyme disease patients have compared the effects of the drugs with placebos and found no difference.

White House staff have not made public whether President Bush received the short-term antibiotic treatment or a more expensive long-term treatment.

A White House media representative on Aug. 15 said she would find a spokesman to answer questions about the president's treatment. But as of Wednesday, the White House had not responded. The White House media office also did not respond to a voice message left again last week.

All staff will say is the president is cured.

Contact reporter Dana M. Nichols at (209) 754-9534 or Visit his blog at
Viimeksi muokannut Bb, Pe Huhti 16, 2010 18:08. Yhteensä muokattu 2 kertaa.

Viestit: 1820
Liittynyt: Ma Tammi 26, 2009 23:13

Viesti Kirjoittaja Bb » Su Helmi 01, 2009 21:28

USA:n presidentti Bush sairastui borrelioosiin n. vuosi sitten. Hän sai hoidoksi antibiootteja mutta julkisuuteen ei kerrottu kuinka pitkän hoidon hän sai. Tiedetään kuitenkin, että hänen lääkärinsä olivat olleet yhteydessä esim. Kansainvälisen Borrelioosijärjestön, ILADS:in lääkäriin. Bushin kerrottiin toipuneen borrelioosista. Allaolevan artikkelin mukaan hän on nyt hakeutunut hoitoon olkapääkipujen vuoksi. Vasen olkapää kuvattiin magneettikuvauksella ja hoidoksi annettiin perinteisesti kortisonia.

While visiting injured soldiers at Walter Reed Army Medical Center, President Bush on Monday sought some medical treatment of his own. The president has been feeling pain in his left shoulder and received an MRI scan upon his arrival in the early afternoon. After looking at the results, doctors gave the president a shot of cortisone, an anti-inflammatory medication, White House spokesman Gordon Johndroe said. ... eye23.html

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Viesti Kirjoittaja Bb » Su Helmi 01, 2009 21:29

Bushin sairastumisesta tiedotettiin virallisesti ja julkisesti Valkoisen Talon taholta häntä koskevan vuosittaisen terveysraportin yhteydessä.

Borrelioosi/Bush video ... enerating/

"..Bush was treated for what his doctors described as ?early, localized Lyme disease? last August after developing the characteristic bullseye rash. The doctors said he has had no recurrence.

White House spokesman Scott Stanzel said the disease was not disclosed earlier because it happened after he had his last physical, on Aug. 1, 2006."

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