My 48-year-old boss (who has been a major blessing in my life) was recently diagnosed by Mayo Clinic as having ALS. Needless to say, we all were devastated. Fortunately, one of his clients shared with him that they had heard that Lyme Disease is sometimes misdiagnosed as ALS.
My boss did some net research and discovered that there are only two labs in the U.S. that test for the Lyme Disease spirochete itself; the others merely test for antibodies. He had his blood drawn and sent to one of those two labs. His readings were off the chart for Lyme Disease! (: He's late stage (may have had it for as long as ten years; evidently the body quits making antibodies after awhile) and has neurological damage, but with treatment Lyme Disease is not life threatening! He's even hoping to regain some of his loss of function, which is not too bad at this point.
He is now on a course of antibiotics--standard treatment for LD--but aware from his recent research into alternative medicine that antibiotics can cause their own problems. An avid hunter and carnivore, he is now going to start what he says would have been unthinkable to him just two months ago--a mostly raw vegetarian diet! He's also interested in detox. (BTW, in his ALS net research, he discovered that the Chinese think ALS is a liver problem.)
Just wanted to let anyone faced with an ALS diagnosis know that there is another possibility to check out, even if the diagnosis came from "experts."