KAREN OLLUT 20 VUOTTA SAIRAANA

Borrelioosiin sairastuneiden henkilökohtaisia kokemuksia taudista ja sen hoidosta.

Valvojat: Borrelioosiyhdistys, Bb, Jatta1001

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Bb
Viestit: 1820
Liittynyt: Ma Tammi 26, 2009 23:13

KAREN OLLUT 20 VUOTTA SAIRAANA

Viesti Kirjoittaja Bb » La Tammi 31, 2009 12:20

Kerryblue: "Olin aikoinaan iloinen, aktiivinen, energinen, ulkoilin paljon, nautin elämästä keskivertoihmisiä enemmän... Sitten eräänä päivänä kaikki muuttui.

Olimme tyttäreni kanssa puistossa jossa oli peuroja. Tyttärelleni nousi korkea kuume 2 päivän ajaksi, ei muita oireita. Minä olin sairaalassa aivokalvontulehduksen vuoksi 10 päivää. Vähitellen oireet pahenivat; tasapaino heikkeni, univaikeudet, paljon erilaisia pieniä oireita. Useimpien ihmisten mielestä oireeni johtuivat stressistä koska mieheni oli uskoton ollessani sairaalassa. Siihen aikaan minäkin uskoin oireideni johtuvan stressistä. Kuntoni heikkeni kuitenkin edelleen. Pakotin itseni töihin, vaikka se oli päivä päivältä yhä vaikeampaa. Lopulta jouduin sulkemaan yritykseni.

Kävin useiden lääkäreiden luona, kohtelu oli... Oireeni pahenevat edelleen; kipua, fatiikkia, pahoinvointia, rakkovaivoja, univaikeuksia jne. jne. Jokainen päivä on valtavaa taistelua. Alussa minulla oli joitakin hyviä päiviä, mutta ei enää. Nyt oireiden alkamisesta on yli 20 vuotta. Olen osallistunut erilaisiin tutkimuksiin ja saanut useita erilaisia hoitoja ja diagnooseja, esim. fibromyalgia, Epstein Barr -virus, krooninen fatiikki.

Olen käyttänyt hoitoihin paljon rahaa vuosien aikana - en ole tullut parempaan kuntoon. Samento on osoittautunut jonkin verran hyödylliseksi. Pitkään aikaan en tiennyt sairastavani borrelioosia. Pitkäaikaista antibioottihoitoa en ole saanut, mutta useita muita hoitoja kylläkin."


"Once there was the most fun loving, active, outdoorsy,& enjoyed life to it?s fullest, more energy than average gal. You would enjoy to be with...

Then a little tick changed my life forever. On vacation deer came up to my daughter & I at park, we petted. She ran high fever for 2 days. No other illness, then woke fine, or maybe not??? I came home spent 10 day in hosp. with meningitis, type the doc?s stood over bed scratching their heads over... NEVER was same again. Began with small things, Balance, hurt to sleep, few other minor symptoms. Most said It was stress, while in hosp. husband ran with another gal. What a double blow, yes, to be left when 1st time ill after yrs. of taking care of kids, & ex when ill for yrs. I then bought into stress the cause.

Later had fall, kept getting worse instead of better. I was a Tom Boy, thrown from many horse, been in bad car accidents. Always got back up brushed myself off, went back out again, did all over. Not this time. Still bought into the stress thing, even though deep down knew something much more was wrong. Yet, kept pushing, trying to work, yet became harder & harder.

One by 1, giving up my extreme amount of sports, working on contracts, less & less. Had own businesses just taking off, could not keep up. This was person known as Energizer Bunny. You say lets go, I was there.

To jump past all the multitude of Drs. who treated you, well most of you know, not printable.. About 10 yr. later, now becoming a lot worse, pain, fatigue, nausea, bladder, sleep, you name it, a huge battle EVERYDAY OF MY LIFE... I used to get few good days No more. Now 20 yrs. later plus No Help. I have put myself in test studies, being dxed with FM, EBV, ME, lost track of all treatments, dx?es to be honest.

I felt God had to give me this for some reason. Helped out at Pain Clinic, doing patient work-ups, 3yrs.. Many fm'ers I wanted to cry listening to their stories. Then I had to realize I was them. When I told them that, what a change in their face, we cried, laughed, was able to give them what they were searching for. Owner of Clinic people came from all over US. She believed in FM, Cfids etc. Now she believes it is Lyme after 30 yr. of helping fm'ers.

I also had opportunity to work with & be in Bowen research. This is 1 of only true doc?s on cutting edge of Lyme. Dr. W. now believes, anyone bitten by anything in their lifetime, holds the Lyme bacterium/crosses over viral. She has spoken all over the world, uses testing that actually can show the chetes, multiplying, mutating, they need no host, you can see it for yourself.

Tried many things along the way just not long term antibiotics. Samento is proving helpful though, after research, looking better. I also spent most of my Money on NOT getting well for yrs. Did not know I had lyme. Keep your $$$ for what helps you. Think trip to Tahiti would have been allot more fun & helpful, tee hee. OK....Signing Off, Huggsss to all suffering, I hear You!!! Thanks for listening, Karen

http://www.remedyfind.com/newsletters/D ... sease.html

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