Borrelioosiin sairastuneiden henkilökohtaisia kokemuksia taudista ja sen hoidosta.

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Liittynyt: Ke Tammi 21, 2009 14:16


Viesti Kirjoittaja soijuv » La Tammi 31, 2009 09:07

Australialainen Matt sairastui 12-vuotiaana. Hän sai alussa kivuliaita päänsärkykohtauksia. Lääkärin mukaan kyseessä oli poskiontelotulehdus. Matt sai siihen toistuvia antibiootteja, mutta oireet palasivat takaisin. Lääkäri sanoi, ettei hän tiedä miksi Matt ei tule kuntoon.

Tämän jälkeen Matt alkoi saada virtsatietulehduksia. Lastenlääkärin mukaan Mattin sairaus oli psykosomaattista ja hänet on pakotettava menemään kouluun.

Mattin pääkivut voimistuivat ja hänelle tuli valoarkuutta silmiin. Hänellä oli myös huimausta ja fatiikkia. Uuden lastenlääkärin mukaan Matt on psyykkisesti sairas ja hänet tulee laittaa psykiatriseen sairaalaan. Jonkin ajan kuluttua Mattin neurologiset oireet pahenivat, pupillit laajenivat, näkö alkoi heikentyä ja hän näki asiat kahtena yms. Psykiatrin mukaan "mielellä on uskomattoman suuret voimat".

Yksi Mattin koulun opettajista kertoi laittaneensa Mattin oireet Googleen ja sanoi niiden sopivan borrelioosiin. Emme olleet koskaan ennen kuulleet borrelioosista. Kirjoitin borrelioosikeskustelusivuille ja sain yhdeltä henkilöltä ohjeen käydä tutustumassa Marshallin protokollaan. Menimme Sydneyssä lääkärin luokse ja aloitimme MP:n. Pian hoidon aloittamisen jälkeen Mattin terveys alkoi parantua. Hän on tällä hetkellä 80 - 90 % paremmassa kunnossa. Hänellä on vielä jonkin verran päänsärkyä ja fatiikkia.

Alla on osa tarinasta- koko kertomus löytyy osoitteesta

Interview with Marshall Protocol mother, Robyn Russell

Posted By amyproal On October 28, 2007 @ 11:42 am In interview, marshall protocol | 1 Comment

She?s a Senior Principal Research Scientist and the Research Program Leader of Enzymology & Synthetic Biology for the Division of Entomology, Commonwealth Scientific and Industrial Research Organization, in Canberra, Australia. Despite her broad background in the biological sciences, and her PhD in immunology, she was unaware of the pathogens causing her son?s illness? that is until she learned about Autoimmunity Research Foundation?s Marshall Protocol. Dr. Robyn Russell will now take your questions?.

When did Matt start to get sick? What happened?
Everything started in June 2004 when Matt was 12 years old. Matt started to have very painful headaches. It was in June that my husband and I first wrote one of Matt?s teachers a note saying that he wasn?t able to complete his homework because of his headache. We were concerned because a child his age should certainly not be suffering from debilitating headaches. We saw a doctor and he told us that Matt had a sinus infection. Over the next few months he was put on courses of high-dose antibiotics but the head symptoms would always return. Finally the doctor said, ?I have no idea why Matt is not getting better.?

Robyn Russell and her son, Matt, who used the Marshall Protocol to recover from a variety of severe symptoms.We were referred to an ear, nose and throat doctor but there was a three-month waiting list in order to see him. During the time we had to wait for the appointment Matt began to develop urinary tract infections as well, which is uncommon for a boy. We had a family vacation planned to Europe that was centered around a scientific conference that my husband and I were planning to attend. While on the trip, Matt continually woke up with a terrible headache. As the day wore on, we?d do everything in our power to distract him, saying ?Look, the Louvre! The Mona Lisa!?, but Matt just wanted to go home and rest, and the distraction was a losing battle. During the trip Matt did find that swimming helped his headache.

Once we got back to Canberra, Matt started to miss school increasingly regularly. His head hurt so much that he simply couldn?t concentrate. My husband and I were forced to come pick him up in the middle of the school day. We would take him swimming because that was the only way he could get some relief. I remember the last time we tried that he spent four hours in the water trying to get rid of his headache, but it didn?t work any more so we had to give up.

Finally we were able to see the ear/nose/throat specialist. He told us, ?Matt doesn?t have a sinus infection and I have no idea what is making him sick.? I thought, ?Oh no, what are we going to do?? The doctor told us to see a pediatrician. Once again we had to wait weeks for the appointment. During that time I was able to do nothing, just watching Matt suffer from the pain. When we finally saw the pediatrician he told us that in his opinion Matt?s illness was psychosomatic. He said that we should force Matt to go back to school. My husband and I just looked at each other wondering how Matt could possibly make it through a full school day. Matt was also referred to a psychologist.

When the psychologist spoke with Matt she became convinced that his illness wasn?t psychosomatic. She felt he had a ?post-viral? syndrome. Looking back with 20/20 hindsight she was at least on the right track.
During this time Matt started to develop a tic. Actually it was more than a tic, it was a grunt accompanied by an involuntary jerk of his head. We went back to his pediatrician practically begging for help. When we told him the psychologist didn?t think it was a psychosomatic, the pediatrician got angry and said, ?Well, she?s never let me down before!? He was convinced that it was still psychosomatic and refused to investigate any further. I was a mess. I broke into tears and said, ?What do we do?! Our child is sick and we?re on our own!? Our GP pulled some strings and got us an appointment with an adult neurologist here in Canberra.

During this time, Matt?s tic started to get worse. At its worst he would feel what he called a ?surge? coming to his head. He would throw himself violently forwards and backwards about 5-6 times, as if he had been taken over by a massive wave. He would grasp his head because of the pain. This happened about every minute of every waking hour of the day. Later I found out that what he was suffering from what is called a myoclonus, something that our doctors had never seen before. We also noticed that Matt was starting to avoid light. He stopped watching TV and only wanted to stay inside his dark bedroom. He couldn?t read or write because his head hurt so much. He couldn?t even bear to look at a piece of paper.

Before the Marshall Protocol, Matt was very weak. Now he?s much stronger.At the same time he started to feel much more fatigue coming on and always wanted to stay in bed. He also began to experience vertigo. He couldn?t lay down flat on his back because it caused the vertigo to increase. He started to sleep while propped up on five pillows so that he wouldn?t feel as dizzy. He also developed a strong aversion to riding in motor vehicles.

We saw a new pediatrician. He had Matt go to the hospital to get a lumbar puncture done. The doctors focused only on Matt?s headache and ignored his other symptoms. It was weeks before we could get the results of the lumbar puncture. During that time I was frantic. We were out on our own and Matt was getting worse and worse ? his headache and myoclonus were getting more violent. I remember sitting on the couch trying to hold him while he thrashed back and forth? it was terrible. Finally we called Matt?s pediatrician at home and told him we were taking Matt to the hospital. He was admitted and put on painkillers. They did an MRI, which required Matt to lay flat on his back. He was in agony.

He was put on an anesthetic so that he could have another lumbar puncture done. While on the anesthetic, his myclonus temporarily stopped. Then a few hours later it returned in a different manner. He would feel a surge coming on, then grab his head and scream AHHHHHHH! He didn?t even realize that he was screaming but he could be heard a mile off. We were panic stricken and the entire family was a mess. A 24/7 social worker that was supposed to work with Matt actually ended up counseling the entire family. Matt stayed in the hospital. He stopped eating. He basically just shut down.

The doctor insisted that Matt was psychologically ill and should be put in psychiatric care. When I questioned his diagnosis he said, ?Robyn, I?ll tell you again, there is nothing physically wrong with Matthew!? We were told that Matt had a generalised anxiety disorder and should do cognitive behavior therapy. By that time I had given up. I said ok. Somebody please fix my son. I put my faith in the doctor?s diagnosis. Matt wanted to go home but they wouldn?t let him leave the hospital unless he started eating and walking. In order to get him to comply they said that we were only allowed to spend one hour with him each day. Since he was used to having us around constantly he forced himself to try to walk to the toilet and eat. It broke our hearts. They finally let him come home.


I?d say that Matt is about 80-90% recovered. I truly feel this is the beginning of the end. Matt is almost completely well again. The only things he still deals with are a mild headache and fatigue, but even these are starting to go away. Over the past few weeks Matt has told us that he actually goes through periods where he feels no headache at all. So at long last, those headaches that he has put up with for more than 3 years now are on their way out. If they go the same way as his other symptoms then we would expect that the periods of headache-free time will increase daily until they are a thing of the past. We just can?t wait! Note from Amy: At this point in the conversation Matt approached his Mom on the phone in order to tell her he hadn?t had a headache for the last 40 minutes. She said, ?Isn?t this amazing!? I agree!

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