http://www.suburbanchicagonews.com/beac ... S1.article
Dr. Peter Gott Untreated symptoms of Lyme disease are costly
October 14, 2006
Our daughter suffered over 1-1/2 years with Lyme disease before it was diagnosed. She was misdiagnosed with rheumatoid arthritis. She saw an internist and two rheumatologists before going to a preventive medicine clinic in San Francisco where the Lyme test was given and came back positive.
She has been treated for Lyme since January of this year and is slowly improving. A very high level of pain and suffering, not to mention cost, because doctors don't believe Lyme is here and refuse to test. We know of six misdiagnosed cases in Northern California recently. Thank you so much for anything more you can do to spread the word that if there are ANY symptoms -- not all, ANY -- of Lyme to test, no matter where a person lives. Your article in the paper concerning the man who took his life because of the pain of Lyme made my heart ache.
Lyme disease can be a dreadful affliction. I know because I was recently treated for it. My symptoms were malaise, weakness, poor coordination, extreme fatigue and loss of appetite.
My primary care physician examined me and noted a circular bulls-eye rash on my back, a blood test confirmed the diagnosis of Lyme, for which I was prescribed doxycycline for three weeks. Unfortunately, this occurred two days before my vacation at the shore. Thinking that the sun sensitivity caused by the antibiotic occurred only with protracted exposure, I rode my bike and swam. On the fifth day of my holiday, I awoke with redness, sensitivity and blistering of my arms, face and lower legs -- the very body parts that I failed to protect. My remaining vacation was, to say the least, somewhat disappointing. Now one month later, I have recovered from both the Lyme and my reckless stupidity -- but I have new respect for Lyme as well as the enlightenment that here is one doctor who failed to follow his own advice to patients (stay out of direct sunlight when you take doxycycline) -- with potentially disastrous consequences.
Your comments are well grounded. If you and I can help only one misdiagnosed patient, we have done a good job. Thanks for sharing.
Lyme Disease Institute, board member
author, Lyme Disease: A Mother's Perspective