Borrelioosiin sairastuneiden henkilökohtaisia kokemuksia taudista ja sen hoidosta.

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Liittynyt: Ke Tammi 21, 2009 14:16


Viesti Kirjoittaja soijuv » Pe Marras 13, 2009 19:33

Bakteerien osuus psyykkisiin oireisiin

?Kuudennella luokalla Sammy sai yhtäkkiä pakkomielleoireita; hän esim. hyppäsi näkymättömien seinien yli, kosketti tavaroita ainoastaan nenäliina kädessään, kieltäytyi peseytymisestä jne. Äiti epäili pakkomielleoireyhtymän olevan virhediagnoosin. Äiti alkoi etsiä lääkäriä joka kykenisi Sammyn lisäksi auttamaan koko perhettä sillä hän epäili psyykkisten sairauksien taustalla olevan infektiotaudin.

Äiti, Beth Alison Maloney, päätti kirjoittaa perheen kokemuksista kirjan: ?Saving Sammy: Curing the Boy Who Caught OCD?.

Kirjassa hän kertoo useimpien lääkärien pitäytyvän yleisesti hyväksyttävissä diagnooseissa eivätkä he vaivaudu ajattelemaan potilaiden tilannetta laajakatseisemmin. Sammyn tapauksessa suurin osa lääkäreistä kieltäytyi tapaamasta tai hoitamasta häntä. Onnekseen perhe tapasi lääkärin joka ymmärsi bakteerien osuuden potilaiden oireisiin. Sammylla oli streptokokin aiheuttama infektio. Maloney kertoo kirjassaan toisesta lapsesta jolla oli autismiin liittyviä oireita. 16-vuotiaana hänellä todettiin borrelioosi. ?

Artikkeli + video: ... ok-review/

Saving Sammy: Curing the Boy Who Caught OCD (Book Review)
11 November 2009

Saving Sammy

Starting middle school is tough enough without adding mental illness to the mix. Beth Alison Maloney?s son Sammy ? a bright, normal, happy kid just entering Sixth Grade ? suddenly started exhibiting signs of severe Obsessive-Compulsive Disorder. The sudden onset of symptoms ? complex ?rules? that made him step and hop over invisible walls, feel his way blindly around the room with his body pressed against the wall, refuse to touch objects without a Kleenex, scream and cry and refuse to bathe ? coupled with the absence of any family history of OCD, made Sammy?s mother wonder if the doctors hadn?t gotten it all wrong. Her relentless search for a doctor who could help make Sammy well again ? who could help the whole family, because it isn?t just the mentally ill, but their whole family who suffer ? led her to uncover a link between infections and mental illness. Her desire to help others drove her to write Saving Sammy: Curing the Boy Who Caught OCD.

I was stunned by Beth Maloney?s persistence and resilience. Few people who have not cared for a loved one with severe mental illness can fully appreciate the isolation and desperation of it. Ms. Maloney was fortunate to have a supportive school system, understanding relatives, and a network of devoted friends; even so, all of those people get to go home at the end of the day to recharge. Beth Maloney, divorced mother of three, not only had to deal with Sammy and his severe illness, 24/7, for nearly two years, she had to hold it together and be the best mother she could be to her other two sons, Josh and James. Somehow, through all of it, she held onto a ragged scrap of hope ? because what else can a mother do? Anything else would have been to give up on her son, and she was determined to have him back, healthy and whole. This book stirred up feelings of anger as I read it.

Too few doctors are willing to practice the ?art? of medicine, as Ms. Maloney put it. It?s safest to stick with the generally accepted diagnoses and conventional treatments, and doctors don?t always welcome probing questions and new theories, particularly those presented by patients, parents, and other caregivers. In Sammy?s case, an amazing number of doctors simply refused to see him or attempt to treat him. In the long run, this may have proven to be a blessing, as it led Ms. Maloney to the doctors who were brave enough to try, and to succeed. But most doctors refused to seriously consider a link between infection and Sammy?s debilitating OCD behaviors. This was not particularly surprising; Sammy had never been diagnosed with a strep infection. Yet blood tests revealed an elevated strep titer ? evidence of a previous strep infection.

Beth Alison Maloney, author of Saving Sammy

Saving Sammy: Curing the Boy Who Caught OCD highlights the need for courage, creativity, and compassion in the medical field. It also offers hope to other parents who may be struggling with a baffling diagnosis of pediatric mental illness.

Ms. Maloney, in a postscript, describes meeting another mother whose son was diagnosed with Pervasive Developmental Disorder, an autism spectrum disability. Though this child?s symptoms were markedly different from Sammy?s, Ms. Maloney thought to ask if he had ever had an infection requiring antibiotics. ?Not since he was sixteen months old,? the other mother answered. ?He had Lyme Disease.? At Ms. Maloney?s urging, the mother had her son tested for Lyme Disease. It turned out that he had an active Lyme infection.

Sammy: A Boy Full of Hope
Watch Sammy?s story on the Today Show:

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