ASIANAJAJAT JA LÄÄKÄRIT BORRELIOOSIHOITOA EDISTÄMÄSSÄ

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ASIANAJAJAT JA LÄÄKÄRIT BORRELIOOSIHOITOA EDISTÄMÄSSÄ

Viesti Kirjoittaja Bb » Su Helmi 15, 2009 13:49

Lähettäjä: Soijuv Lähetetty: 19.12.2007 18:08

"Lääkärit ja terveydenhuollon asianajajat kehottivat eilen lainsäätäjiä parantamaan kroonista borrelioosia sairastavien hoitoon pääsyä. Asianajajien mukaan vain pieni osa lääkäreistä hoitaa punkkien välittämien sairauksien pitkäaikaisvaikutuksista kärsiviä potilaita koska hoidot eivät ole saaneet virallista hyväksyntää laajemmissa lääketieteellisissä piireissä. Pitkäaikainen antibioottihoito parantaa kuitenkin potilaiden elämänlaatua. Yhä vielä löytyy sellaisia joiden mielestä kroonista borrelioosia ei ole edes olemassa eivätkä potilaiden oireet ole muuta kuin päivittäisiä vähäisiä kipuja yms. vaivoja. Asianajajien mukaan tilanteelle on tehtävä pikaisesti jotakin sillä monet lääkärit eivät uskalla hoitaa kroonista borrelioosia sairastavia koska pelkäävät menettävänsä lääkärinlupansa.

Elizabeth White on eläkkeellä oleva sairaanhoitaja joka sairastaa punkkien välityksellä saamaansa babesioosia ja bartonellaa. Hän on sairastanut jo 9 v. ja kertoo että hän olisi jo kuollut mikäli ei olisi alkanut käyttämään vaihtoehtolääketieteen tarjoamia suonensisäisiä hoitoja.

Tri Cameronin mukaan borrelioosia sairastavien tulee saada hoitoa borrelioosiin erikoistuneelta lääkäriltä eikä yleisten ohjeiden perusteella - ohjeiden, joiden mukaan kaikille annetaan n. kuukauden mittainen antibioottihoito. Lisäksi potilaiden tulee saada itse päättää eri hoitovaihtoehdoista. Tänä päivänä suurin osa lääkäreistä käyttää kuitenkin hoito-ohjeissaan valmiiksi kirjoitettuja "keittokirjaohjeita" (Suomessa ns. "Käypä hoito-ohjeet").

Borrelioosiasianajaja P. Smithin mukaan suurta osaa borrelioosia sairastavista hoidetaan väärin sillä monet on diagnosoitu väärin (esim. MS-tautisiksi). John Hopkinsin yliopiston tutkimuksen mukaan ainoastaan 25 % borrelioositapauksista pystytään löytämään nykyisillä laboratoriotesteillä.
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By Natasha Lee
Staff Writer

December 19, 2007

HARTFORD - Doctors and health advocates urged legislators yesterday
to improve and protect access to treatment for people with chronic
Lyme disease.

Advocates say only a small number of physicians are treating long-
term effects of the tick-borne illness because such therapies are not
accepted by the mainstream medical community, which says there are no
proven benefits.

Long-term antibiotic treatment lowers the chance of misdiagnosis and
increases the quality of life for patients with the disease, Dr.
Daniel Cameron said at a breakfast forum hosted by state Rep. Jason
Bartlett, D-Danbury, who has pushed for legislation to improve Lyme
disease reporting to the state Department of Public Health.

"There's this view that there's no such thing as chronic Lyme and
that it's nothing more than the aches and pains of daily living,"
said Cameron, president of the International Lyme and Associated
Diseases Society, a nonprofit group focused on advancing treatment.
He also runs a practice in Westchester County, N.Y.

Advocates yesterday morning asked legislators to push for protection
of doctors who treat chronic Lyme. Cameron said the controversy has
prompted some physicians to shy away from progressive treatments for
fear their licenses could be revoked.

"(The) patient really loses if doctors are always looking over their
shoulder to see if the state is watching," he said.

Elizabeth White, a retired nurse practitioner from Trumbull, has
suffered from babesiosis and bartonella - both tick-borne illnesses -
for nine years, and said if she hadn't sought alternative intravenous
therapy, she would have died.

"This is a devastating disease, especially for people who can't find
a Lyme-literate doctor," she said.

The state reported more than 1,700 cases of Lyme last year.

Cameron said treatment should be determined by physicians experienced
in Lyme disease and not by conventional guidelines that recommend
only a 30-day antibiotic treatment.

Lyme can cause severe joint pain, fatigue, temporary paralysis,
depression, irregular heart beat and dementia.

"Patients need to be able to choose their options of treatment, and
we need freedom to use our own judgments as doctors," Cameron said.

A majority of physicians, however, use guidelines recommended by the
Infectious Disease Society of America that say Lyme disease can be
treated and cured within two to three weeks.

"There is no data to suggest otherwise and this has been looked at,"
Dr. Gary Wormser, said in a telephone interview. Wormser is a doctor
with the New York Medical College in Valhalla, N.Y., and is a
spokesman for the infectious disease society.

The society said the disease can be easily diagnosed by the presence
of a bull's-eye rash or a positive blood test.

Wormser said studies over the last five years show ongoing
intravenous treatment can lead to complications or create drug-
resistant superbugs that are difficult to treat.

"The side effects outweigh the benefits," he said.

But Lyme advocates like Pat Smith, president of the Lyme Disease
Association in New Jersey, said at the forum yesterday that current
testing methods are unreliable. Smith said Lyme symptoms are often
mistreated because they can mimic those of neurological disorders
such as multiple sclerosis, Alzheimer's disease and chronic fatigue.
She cited a recent Johns Hopkins study that reported only 25 percent
of positive cases of Lyme are identified by a blood test; and a rash
may occur only 50 percent to 60 percent of the time.

As controversy surrounding treatment grows, patients are
shortchanged, Smith said.

"We can't let patients be in limbo while these discussions are being
held," she said. "We need to address these issues now."

The debate is fueled by the case of a New Haven doctor whose
treatment of Lyme disease in two Nevada children in 2004 and 2005 was
called into question by the state Department of Public Health.

The state Medical Examining Board yesterday gave Dr. Charles Ray
Jones two years of probation and a $10,000 fine for diagnosing the
children with Lyme disease and treating them with antibiotics before
examining them.

Jones disputed that, and said he planned to appeal the decision.
Jones has drawn support from across the country because he has
ignored consensus treatment guidelines for Lyme disease and
prescribed antibiotics to children with the ailment.

Wormser said physicians frequently overdiagnose Lyme disease.

"What's alarming to me is that they diagnose people of having a
disease they don't have at all and recommended long-term
antibiotics," he said.

Georgina Scholl, research chairwoman of the Fairfield County
Municipal Deer Management Alliance who attended the forum, said she
wasn't qualified to comment on treatment. Stamford, Norwalk and
Greenwich are members of the alliance.

Scholl instead emphasized prevention as the key to decreasing the
disease.

"Treatment doesn't give you immunity and protection. Let's focus on
prevention," she said.

- The Associated Press contributed to this story.
Copyright © 2007, Southern Connecticut Newspapers, Inc.
http://www.stamfordadvocate.com/news/lo ... -headlines

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